Making Music and Hair Loss

Yesterday I slept 99.9% of the day and the other part that I was awake, I spent making music from my bathroom. I'll let you guys figure out what that means but the opposite of what I experienced in round one has come in the form of what's likely dehydrated me in round two. The level of exhaustion I've had is hard to describe.

Today I am all frosted up with my lidocaine cream because I'm going to get fluids from the infusion center in about an hour. I'm really looking forward to that because I feel completely dehydrated as I mentioned before and while I don't have any feelings of needing to throw up, I feel like my body has been completely emptied of any nutrient it's had. I am trying to eat, but very sensitive to staying ahead of the nausea and as I reported in the last post, I'm doing a pretty good job heading that off.

My body went from being fully swollen to now being completely skin and bones so it's scary how much your body can transform in just a seven-day period. I am signed up for oncology rehabilitation and I look forward to starting that to try to build up some strength but right now that seems millions of miles away. I just need to figure out what I can hold down in my stomach and how to get calories in.

I was going to report yesterday but skipped the update because I was too tired and I was happy to tell everybody that I did not sweat through my clothes the night before last again likely because my body has completely lost any extra fluids. I did sweat through last night so I'm not out of the woods there but at least it's not three or four times a night.

I actually had my Glucerna chocolate shake over ice today and tolerated that with no problem so it looks like there are a few days in the cycle I can actually have something cold versus room temperature. It's just a timing game.

The most devastating part of today was losing about half my head of hair in the shower and that's just a post that's gonna have to be dedicated to its own topic because it triggered some deep grief about my mom losing hers just a few years ago. More to come on that later.