Still here and NOT discharged, staying longer, chemo starts here

Quick update from the penthouse view on floor ten at the luxurious Center for Care and Discovery at UofC. After the battery of tests over the last 24 hours, the team has decided I should stay checked in here for round-the-clock pain management. I am not going home today. Every single human being that have come in contact has been empathetic and kind and helpful. These are truly special people and I knew this from my experience working with this team closely from my mom but when it’s your journey, it hits different that’s for sure.

I got a bunch of messages wishing me luck for the chemo. I was supposed to get in Crownpoint today. That was sidetracked by this pain but now I will get first class VIP treatment getting this chemo right from this room. I will need to stay here for 48 hours minimum so we might as well just call it. I’ll be here till Friday. They are working up the authorization as we speak because remember this was already authorized through Northwest Cancer Centers in Indiana, which is not affiliated with university of Chicago. I will not have a pump to take home because I will just get it straight from here and they will provide all the other accoutrements for what they are calling in a very, very aggressive kickoff plan. My liver is has shown rapid disease disease spread within the last two weeks from the first CT that was taken on April 15 to the one we took yesterday. We need to throw everything at this or I will not be able to move and I’m ready.

I’m actually shocked that I’m able to crank out this update because as per usual I’m very tired and they have me on the right dosing of pain management so again if I’m not making sense or something isn’t clear I apologize in advance. Doing my absolute best to interpret and be accurate but wow it’s so different being the patient versus the caregiver.

For anyone who knows me they know I love chef tastings at fancy restaurants so what I’ve ordered here may shock the hell out of people, but this was the dish of choice from Theresa Cicco, who was a total meat and potatoes, girl and I really did it for her to pay respect to her being in this exact same place three years ago. So the plan has been reset and I will have that chemo running through my veins tonight or tomorrow at the latest. LFGGGGGGGGGGGGG