Crappy Day, MLB & SU2C 💩⚾️🏟️

It’s day NINETY of this shitshow 💩. Geez just when I proclaim my positivity and optimism to thousands in a LinkedIn newsletter, I have what felt like an anchor ⚓️ pull me back to reality. This is cancer. Good Days and Bad Days. Definitely starving for my independence. I must figure out a way to drive myself again for I feel I am just a sheer burden on everyone around me. They will all say I’m not but i HATE depending on others, anyone at all. It goes against who I am and my DNA. I am just starving for some kind of normalcy from my pre cancer life. On a positive note, we had to pick up our other vehicle from Tesla today and I actually drove it home. First time driving in 90 days. Let’s call this the highlight. Everything else sucked.

While today was not a great day today for many many reasons, there is always tomorrow. Maybe I will be able to eat and hold down foods. It’s been impossible to get food in and to keep it there.

My spirits were just lifted minutes ago when my daughter Gina called me and said her friend Tommy is at the ALL STAR game in Philly holding up a sign with my name on it - MLB’s Stand Up to Cancer movement (SU2C). In last few minutes my friend Lisa Ellis text me saying she stood up for me as well. This is the power of people and messages and support. I feel better at the end of this journal entry than I did when I starting writing at the beginning. Tommy, thank you, seeing your photos brought me a moment of great joy this evening.

Baseball is in our family DNA so this is very special. Learn more about this SU2C and the impact of the MLB’s work here: https://standuptocancer.org/MLB

Now for logistics….here is my plan for the next several days.

7/15 Wednesday: Fluiids/Hydration/Zolfran IV, Home 🏡 physical therapy and workouts

7/16 Thursday: Rest & Recovery, no appts

7/17 Friday: Labs/Dr Sidani to help rep for chemo round SIX next week.

7/18 Saturday: Tentative outing to New Buffalo if I’m feeling ok, visit founders and Petite Acres team.

7/19 Sunday: Nieces tennis tournament in Chicago if I’m feeling well, check in for Monday consult and procedure with Colorectal Surgeon at UofC

7/20 Monday: Colorectal Consult - Dr Benjamin Shogan. Flexible Sigmoidoscopy will be performed in outpatient setting at University of Chicago.

7/21 Tuesday: Physical Therapy

7/22 Wednesday: Chemo Round Six

7/23 Thursday: Chemo 46 Hours Home Pump

7/24 Friday: Pump Removal, Labs and Dr Follow Up

7/25 Saturday: Sleep/Rest and Mahjong 🀄️ Lessons (Praying I feel up to this but chemo side effects usually hit me Sunday/Monday)

Good Night to All.